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THE 2022 FESTIVAL OF SOCIAL SCIENCE
22 October - 13 November
FoSS and ESRC logos

Understanding the Law around Dementia

A Guide for Carers and Partners of People living with Dementia.

An older couple hug on a sofa

My local area theme

What’s on offer?

The lead organiser, together with two of the co-organisers (Neil Allen and Jason Tetley) were involved as steering group committee members on the Legal Education Foundation funded ‘Law for Dementia Carers’ project. As well as providing advice on strategy, Neil Allen wrote a Learning Course eBook for the project. Under the supervision of the lead organiser, Neil Allen and other academics, the students of both UoM and MMU will provide four live timetabled 20 minute presentations over the three hour period based around the four key areas identified in this eBook:
 

Diagnosing well;

Supporting well;

Living well; and

Dying well.

We will also endeavour to arrange through the Dementia Law Clinic (which forms part of the Justice Hub) for one of our volunteer lawyers, as well as an Admiral nurse, to be on hand for any specific legal/medical/social/family advice in ‘pop up’ drop in sessions. Legal drop in sessions will be triaged by MMU and UoM students, with students on hand to record notes of the advice. All students will be trained in the Dementia Law Clinic and working with carers and people living with dementia before the event.

It is anticipated that the event will last for 3 hours.

What’s it about?

Caring for a person living with dementia can be stressful and physically and emotionally demanding at the best of times. But, during a global pandemic this situation can be exacerbated with many carers of partners living with dementia having found themselves isolated in their own home and many local authorities having changed practices completely, such as moving from all ‘in person’ needs assessments and respite to all online or telephone provision. Whilst many local authorities are trying to return to pre-Covid-19 practices, our interim research findings suggest that carers continue to feel disempowered in understanding and dealing with their legal rights.

Having identified these difficulties, and in collaboration with the University of Manchester’s Justice Hub, Manchester Metropolitan University (MMU), and GM Law Centre (GMLC), this event will seek to provide positive legal help and guidance to carers, as well as provide a social opportunity for carers of people living with dementia to meet and share their experiences.

The event will be situated in the heart of Manchester’s local community at GMLC’s premises in Levenshulme.

Who’s leading the event?

Dr Phil Drake, University of Manchester

Neil Allen, University of Manchester

Professor Debora Price, University of Manchester

Dr Jayne Astbury, University of Manchester

Fintan Walker, University of Manchester

Emma Goodwin, Manchester Metropolitan University

Jason Tetley, Greater Manchester Law Centre

Open to

The event is aimed at carers of a person living with dementia but is open to anyone interested in the area of dementia law. We anticipate charities centred around supporting families with dementia may be also interested in the event.

Event Booking details

Turn up on the day - no need to book

Scheduling information

The event is deliberately timetabled for the afternoon as our research has identified that many carers find attending morning sessions difficult.